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The Challenge

Rheumatic conditions are highly variable and unpredictable, making diagnosis and treatment challenging. Despite advancements in the treatment of chronic autoimmune illnesses, modifiable risk factors like poor medication adherence, limited healthcare access, social determinants of health and comorbidities often lead to mortality and negative patient outcomes.  Deficits/disconnects in  patient-provider communication, patient education, and self-management skills can further complicate successful disease management for those most impacted.  Communication gaps can lead to diminished patient experience, mistrust, and bias. Studies have shown that improved communication and patient engagement can foster trusting relationships with patients and communities, improve patient care and outcomes, encourage research participation, and enhance shared decision-making and adherence. Leveraging tools and strategies to intentionally optimize communication, self-management, patient and community engagement can ultimately enhance health outcomes.